​Online Community

Facebook Support Group - This is currently the most active support group. It is a very close group of parents/caregivers and those close to an individual with 1p36 Deletion Syndrome. Due to the nature of the group, private, personal and emotional issues are often discussed. Because of this the goup has chosen to keep the group closed and will only accept “verified” members. There are several ways you may become a verified member.

Facebook 1p36 DSA Organization site - The 1p36 Deletion Support & Awareness Facebook site is where you can get information about what is going on with the organization as well as post questions directly to the official 1p36 DSA non-profit.