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Meet our Board

The business and affairs of 1p36 Deletion Support & Awareness are managed under the direction of its Board of Trustees. The Board of Trustees ensure that 1p36 DSA is consistently working to achieve its mission.

Click on the names below to see the board member profile:

Ken Shirtcliff (President) - k.shirtcliff@1p36dsa.org

Jennifer Winiecki (Secretary) - j.winiecki@1p36dsa.org

Karen Bess (Treasurer) - k.bess@1p36dsa.org

Doug Cope - d.cope@1p36dsa.org

Rachel Aest - r.aest@1p36dsa.org

Julie Rivera - j.rivera@1p36dsa.org