​Support, Awareness and Education to improve the lives of individuals affected by 1p36 deletion syndrome

If you have a loved one affected by 1p36 deletion syndrome, we’re here to help

1p36 deletion syndrome occurs in approximately 1 in 5,000 to 10,000 live births and 1p36 Deletion Support & Awareness is honored to currently serve hundreds of families affected by this rare genetic disorder.

We strive to reach the thousands more who live without a diagnosis and/or are unaware of support available to them. If you or someone you know would benefit from our support services, please let us know!

What is 1p36 Deletion Syndrome?

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Learn More

Help us Make a Difference

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Donate

Rolling With My Chromies

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Run with us
Run with us

Annual Conference

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Join Us