Making a diagnosis of 1p36 Deletion Syndrome is important in several ways. Knowing your child has 1p36 Deletion Syndrome allows you and your child's physicians to plan for the child's specific medical needs. A diagnosis can also help physicians recognize and treat problems early. A specific diagnosis allows for educational planning with special emphasis on speech and language problems and other issues common to 1p36 Deletion Syndrome. Making this diagnosis also allows for accurate genetic counseling and the option of prenatal testing in future pregnancies. Just as important, is the ability of parents and caregivers to join the 1p36 Deletion Syndrome community to be able to learn and share with those who also have loved ones with 1p36 Deletion Syndrome.