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What is 1p36 Deletion Syndrome?

 

1p36 Deletion Syndrome is a chromosome disorder that can be characterized by moderate to severe intellectual disability, delayed growth, limited speech ability and distinct facial features. It is estimated that 1p36 Deletion Syndrome occurs in one in every 5,000 to 10,000 births though many individuals still go undiagnosed. Though many people have never heard of 1p36 Deletion Syndrome, it is the one of the most common chromosome deletions. Learn More

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Thursday
Oct182012
DateThursday, October 18, 2012 at 8:07PM

Now Accepting Photos for the 1p36 DSA 2013 Calendar Fundraiser

1p36 DSA is again putting together a 2013 1p36 Deletion Syndrome Calendar. We did this last year and it was a great success. With the help of Christina Ferguson and Carrie Daggett we sold over 150 calendars. We are now accepting photos again this year. See info below:

  • Please send ONE picture of your child or loved one with 1p36 Deletion Syndrome to Christina Ferguson's email at MeFergie@verizon.net. 
  • Please make sure the picture is of good quality and resolution. 
  • The picture will be cropped and or edited in order to fit into the calendar.
  • Please include in the email your child's first name and last initial.
  • All pictures must be received by November 1, 2012
  • By sending a picture you are agreeing that your child's image may be printed in our calender fundraiser.

Prices and shipping dates have not been determined yet but the calenders will be around $20-$25 (it's a fund raiser) and will ship in time for Christmas.

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