Guidestar and Greatnonprofit Awards

For Immediate Release

1p36 Deletion Support & Awareness Has Reached the GuideStar Exchange Bronze Participation Level as a Demonstration of Its Commitment to Transparency

BEND, OR – 1P36 DELETION SUPPORT & AWARENESS has received the GuideStar Exchange Bronze participation level, a leading symbol of transparency and accountability provided by GuideStar USA, Inc., the premier source of nonprofit information. This level demonstrates 1p36 DSA's deep commitment to nonprofit transparency and accountability.

"We have worked hard to showcase our progress toward our mission, and our long-held belief in being transparent about our work, to our constituents," said Ken Shirtcliff. "As a GuideStar Exchange participant, we use their platform to share a wealth of up-to-date information about our work to our supporters and GuideStar's immense online audience of nonprofits, grantmakers, individual donors, and the media."

In order to be awarded the GuideStar Exchange logo, 1p36 DSA had to fill out every required field of our nonprofit report page on www.guidestar.org for the Bronze level of participation.

"I encourage you to check out our profile on GuideStar to see what we're all about," added Ken. "We are engaged in exciting initiatives, and we are thrilled to have another platform for communicating our advancement and progress."

About the GuideStar Exchange

The GuideStar Exchange is an initiative designed to connect nonprofits with current and potential supporters. With millions of people coming to GuideStar to learn more about nonprofit organizations, the GuideStar Exchange allows nonprofits to share a wealth of up-to-date information with GuideStar's many audiences. Becoming a GuideStar Exchange participant is free of charge. To join, organizations need to update their report pages, completing all required fields for participation. The GuideStar Exchange level logos, acknowledged as symbols of transparency in the nonprofit sector, are displayed on all Exchange participants' nonprofit reports.

Our mission is to help individuals affected by chromosome 1p36 abnormalities overcome the obstacles they face to be able to lead healthy, happy and productive lives. We do this by providing support and education to their families and increasing awareness of chromosome 1p36 abnormalities in the public and medical community.