Today is World Rare Disease Day! 

There are over 350 million people worldwide affected by a rare disease.  In the US, a rare disease is defined as one that effects fewer that 200,000 individuals in the country at any given time.  In Europe its defined as one that effects fewer than 1 in 2000 births.  

1p36 Deletion Syndrome is a Rare Disease.   It is estimated to effect only 1 in 5-10,000 births.  Please join us and millions of people across the world in support of our loved ones with 1p36 Deletion Syndrome and all people who are living with rare disease!

For more information about World Rare Disease Day please visit:

http://www.rarediseaseday.org/  

National Organization of Rare Disorders

The Global Genes Project