1p36 Deletion Support & Awareness Launches new website

1p36 Deletion Support & Awareness Launches New Website

After several months of hard work, 1p36 Deletion Support & Awareness is very excited to launch our new redesigned website. The board of trustees felt that a new website design was needed to better tie in with our new logo that was debuted in July at the Annual Conference. The new website is clean and modern in appearance, easy to navigate and has much more information available than the current site. The new website platform also allows us to continually update information and keep the 1p36 Deletion community abreast about the newest information about the syndrome, conferences, fundraising and much more. The new website is the one place to go for the 1p36 Deletion Support & Awareness Blog, Apparel Shop and Annual Conference information. Our hope is that both families with a new diagnosis as well as those who have been part of the community for years will be able to get all the information they may need from the new site.

There is also a registration page that will allow you to access members-only information. Right now if you register on the website you will be able to access the 2011 Annual conference videos. Many of you have been asking and they are finally available. All you need to do is register and click on the “for families” tab, then conferences and follow the links to the 2011 conference. The sound quality is not as good as we would have liked but if you turn your speakers up loud you will be able to listen to many of the Speakers who presented at the 2011 1p36 Deletion Support & Awareness Annual conference. The web address is still www.1p36dsa.org so go visit and explore today.