We've told you about our conference this August in San Antonio, Texas but we like you to know about some other 1p36 groups in other parts of the world planning meetings!
2012 1p36 Family - UK & Ireland gathering
In the very near future, 1p36 families in the Netherlands will be getting together. The Dutch organization for 1p36 Deletion Syndrome has organized a family meeting on Saturday, June 1, 2013, in Giethoorn. For more information, see their website: http://www.1p36.nl/.
The 1p36 Family - UK & Ireland group is holding a family conference in Belfast Ireland this year, August 15th through the 18th at The Lamon Hotel and Country Club - www.lamon.co.uk. The total cost of the hotel is £319 based on two adults & two children for the three nights and includes 2 meals plus milk and cookies for the children. To make reservations, call +44 2890448631 and speak with Julie McKeever. If you would like more information please contact the meeting organizer, Sarah, at sarahcoates1@hotmail.co.uk.
Meeting other families affected by 1p36 Deletion Syndrome can be amazingly beneficial not only for sharing information but also to connect with others who are traveling a very similar road as yourself. If you are able, we heartily encourage you to attend.
If you have a gathering you are organizing in your part of the world, even if its just a few families meeting up, please let us know so we can spread the word. Don't forget to share your pictures and stories of the event with us as well!
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