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Group Photo from 2009 Conference |
The 2011 1p36 Deletion Support & Awareness Conference is shaping up to be the best ever! Don't forget to register early so that you can take advantage of the lower registration rate
before May 15th.
Did you know that this year's conference will be the 5th annual conference in the US for families affected by 1p36 Deletion Syndrome! The first ever conference was the idea of an amazing mom of a child with 1p36 Deletion Syndrome in Florida in 2007! Families came from all over (even Italy!) to meet each other and listen to speakers. It was an incredible weekend of learning and sharing. Parents were often heard saying, "Wow! This is like a family reunion with people you've never met!" There was a lot of laughter and tears, camera flashes and smiles.
Ever since then, there has been an annual conference in the US bringing together 1p36 families. Some are veterans who have never missed a conference and some are new to the group or even the 1p36 Deletion diagnosis. Many of the parents have been 'friends' on line for months or years and are thrilled to finally meet each other in person. To be surrounded by so many others that understand exactly what it means to raise a child with 1p36 Deletion Syndrome is a powerful experience.
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| Melanie and Angela at Mom's Night Out |
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| Dr Lisa Shaffer presenting at the 2010 Conference. |
We hope you can join us for this wonderful opportunity to learn and connect. Register Here!
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| Callie and Mollie after some water fountain fun. |
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| Attendees at one of the information sessions. |
Hope to see you there!