Sadly, 1p36 DSA did not win the Pepsi Refresh Grant in October and as we said at the beginning of the month if we didn't win, we are throwing in the towel...for now!  Stay tuned for new opportunities to support 1p36 Deletion Support & Awareness in the future!

The support from 1p36 DSA's voters was phenomenal!  Its apparent that, even though we are a small and newly formed organization, there quite a few folks who support our goals of increasing awareness of 1p36 Deletion Syndrome and providing support to 1p36 families.  There was a lot of competition for the Pepsi Refresh grant money and many very deserving causes won.

That being said, even though 1p36 DSA did not win, we did do a lot to increase awareness of 1p36 Deletion Syndrome and that is our main goal!  So many of you contacted the media, emailed your contact lists and shared  the cause on social networking sites!  Imagine, because all that effort, how many more people are now aware of this rare syndrome!

Thank you so much for your continued support of 1p36 Deletion Support & Awareness. We will continue to update the blog with information regarding our future projects, family stories and other 1p36 Deletion Syndrome news so keep checking back.  Also, many of our Pepsi Refresh Alliance Partners are still hoping to win in November so your votes are still needed to help children with disabilities and chronic illnesses.  We will keep you updated on their progress.